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Reassurance

I almost can’t talk about Liam — at church, anyway — without having someone try to soothe my feelings. (No matter how happy I am.)

About 3 weeks ago he developed stranger anxiety. Although not all babies ever start freaking when a stranger is near (or picks them up), it’s a sign that they are drawing distinctions, so it’s a developmental milestone. The next week I bragged on him at church to Mrs. X. She reassured me that it was a good thing!

Well, yes.

Or, there’s Mrs. Y. She told me that before long Liam would be doing some other developmental thing.

I said, “I don’t think he will.” (It was something that doesn’t fit his personality. I don’t remember what.)

She said, brightly, “Well then he won’t!”

I knew exactly what she meant: that I should take comfort about that he would do this thing; or if I wouldn’t take that, I should take comfort that it was OK that he wouldn’t.

Then there’s Miss Z, who apologized for saying Liam might be normal in some developmental way, because that implied he might not be completely normal, and who are we to say what is normal, and maybe him having Down syndrome was no worse than our usual little foibles or petty neuroses, and –

I’ll be kind and assume this is all well meant — and point out that it’s just not helpful. If you feel the need to comfort someone, you might first check whether that someone looks distraught. And even if he does…

Let him have his sadness. Even if he didn’t need to feel it — and I sure did, those first few weeks of knowing about Liam’s Down syndrome — you couldn’t stop him. If you don’t need to be

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Art critic

We took Liam to First Fridays, a display of local art talent (complete with punch and snacks, of course).  I expected him to show no interest.

I was really surprised at his reliable reaction in one gallery, full of colorful expressionist urban landscapes and abstract paintings.  I’d put him up to one of those huge paintings, and he would laugh and flap his arms in a caper.   He was excited.

(The pictures here aren’t from that gallery; but they’re colorful and therefore similar.)

Then we took him to another with small photographs; and another with black-and-white spidery drawings of ferns (all over the floor, wall, furniture, fruit basket, fruit…).  He gave a different reaction:

We’ve got to get that baby some posters — garish ones.

In other news:  he’s supported himself sitting for about 10 seconds.  Do I hear 20?

Smile Week

Good times could make boring reading . . . but maybe not boring pictures?

After a worrisome April, May and June, due to his infantile spasms, and a long time with no laughing, because of the medication . . . Liam has had a very happy week.  It’s been delightful.

(And in addition to all that smiling and giggling, he’s done these new things:

  • passed toys from one hand to another
  • put his hand down on the floor, when I had him sitting with support, to brace himself.  That’s said to be how they learn to sit
  • found that he can put a cloth over his face and then take it off again, rather than putting it on and wailing because he can’t see!)

Now, Liam’s main activity for the week:

They say babies’ smiles are there to remind the parents, “I’m worth taking care of!”  I believe it!

(This post is also at Liam’s site, Letters to Liam.)

"Best Feeling You’ll Ever Have in Your Life … Just Become a Parent and You’ll Find Out Why"

(Hat tip: HotAir via Creative Minority Report)

Embedded video from CNN Video

My nerves of steel, with sharp ragged edges

He’s discovered his lungs.

When he whimpers and cries over and over while Marisa is feeding him, taking the nipple out of his mouth so he can complain how hungry he is, crying in the car seat, crying when he’s being held, and, yes, screaming bloody murder when I’m changing him, because he wanted food to come first . . . it puts my nerves on edge and makes me crabby.

Marisa was worried about me, and I find that loving and sweet. She brought Liam in and said for him, “I love my Poppa. I just need to scream, too!”

But much as I wish he could find more joy in the world right now (so the rest of us can too), let’s think about it developmentally. He became more dissatisfied with the world after he became a lot more aware of it around mid-December, more alert, more energetic and involved. I’m glad he’s more involved! The flip side of his screaming is his smiling — which he did in church on December 14, dispelling our growing worries that he was hitting his first delay, and making me get teary-eyed. We love his smiles!

We love how much more attention he’s paying to the world — staring at me incessantly (which feeds my ego no end), laughing when Marisa sings the ABC song to him, watching us from across the room, talking and cooing . . . it’s all so normal, so delightful, so much what we needed to see so we could stop worrying about Down’s-related delays for a while!

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Eugenics

This Sunday Times article caused a sort of stir. It shows what radically different world views there are. This is a truism, but in this case, it’s a frightening one. Writer Minette Marrin argues that the quality of life of a Down’s adult, and the effect on society, is awful enough that abortion is a runaway best choice.

We could just dismiss the article for the basis of its argument: her mistaken belief that Down’s syndrome adults lead miserable lives. But I don’t want to just drop it, because it shows us so much about the way people think on the other side of a chasm of belief.

Marrin’s claim that Down’s adults are miserable is based partly on the higher incidence of diseases, but very prominent is her (mistaken) belief that Down’s adults never have sex. Better to die than be celibate? Actually, I kind of relate to this :) , but seriously, I can’t put forth a belief that a sexless life is not worth living. Marrin isn’t embarrassed to put it front and center in her argument. (She does not mention marriage.)

The article also shows a divide regarding language. For her, eugenics is an “ugly word” and should not be used to describe views that belong to her. But actually eugenics is a euphemism (it’s Greek for “well born”), for killing

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